T+5 – Night Triptan

When Gus, my gentle 20lb cat, scratched at the bedroom door at 4:30am this morning to be let in, I knew that I needed a triptan if I wanted to function properly today. I use a contact lens case and have a few Frovas unwrapped** in there and a travel mug full of water and they both live by the side of my bed. I used to have to get up to go to the bathroom to get my dose but I found that often I was so groggy that I wouldn’t actually get up and then by the time the alarm rang, my migraine would be in full swing and beyond catching. This way, I can deal with it as soon as I wake enough to know that I have a migraine then fall back asleep. That usually allows me to continue with my day when the alarm rings.

When I get a migraine while I sleep, I often dream that I am battling a migraine and trying to get through my day. The people in my dream will often tell me I have a migraine or I tell them that I am trying to deal with a migraine. Sometimes, a person in my dream actually puts his face up to mine and says, “wake up” and it is so startling that I do. I do wish that my dreams were more gentle in letting me know about my migraine but then I wouldn’t actually wake up I guess.

So after my 4:30am frova, I slept until 7 and then dozed until just after 8 but woke still feeling that the migraine might come back. By mid-morning that sensation had gone and the rest of the day was good.

Now it may sound like I am trying to find an excuse for my night migraine but I did eat my supper early and I did have a medium popcorn with the movie so my level of nutrition before bed was low. We also went to bed later than usual so those two things may have triggered the attack. And the CGRP is not supposed to cure 100% of migraines (I wish) so maybe this was one of the ones leftover and not because the injection hasn’t worked or the pillow hasn’t made a difference. It’s too early to give up so easily.

See you tomorrow.

**Who decided that triptans needed to be packaged in child and migraineur-proof wrapping? The little tear off corners always just rip as soon as I pull on them making the frova impossible to pop out. There I am, just wanting to crawl into a dark cold cave with a mint facemask and I am rummaging around trying to find some scissors or something to pierce the blister holding my meds. It’s not fair. They should be easy to access, not locked away like some cruel joke to see how desperate a migraineur actually is for the triptan. Obviously not a migraineur who invented that.**

T+4 – Day 1 Triptan Free

It’s 9:30 pm and I haven’t taken a triptan yet. My head started to twinge a bit around 5:30pm but I wanted to give the feeling time to move in or move out before I jumped to Frova. Luckily, it moved out! So I can officially say that this is day 1 without a frova since my injection on Tuesday. I have been thinking about it all day and wondering if I was going to get a migraine so it wasn’t a relaxing, carefree day of no migraine but I am not complaining. I’ll take and celebrate the triptan-free day!

Now I will see if this migraine-free status remains throughout the night and if I wake migraine-free. That will be a big hurdle that I have overcome if I do. Not that one night without triptans and without pain means that I have overcome it forever but I will celebrate the small successes.

The new pillow was not easy to fall asleep on… because it is smaller than my normal two pillows, my arms hurt from being in unusual positions. I was also cold because there was no connection between the pillow and the covers so I need to figure that out tonight. My husband said that it reminded him of sleeping in a bowl of rice crispies because of the noise that the pillow makes each time you move your head and it’s true, but it’s not loud and difficult to sleep through. Once I was asleep, I didn’t wake up from the sounds of the buckwheat moving. Tonight I will see if the new pillow helps to avoid a migraine attack during the night.

Even managed to watch a movie – Hotel Mumbai. If you haven’t seen it and you are interested in movies based on real life, I strongly recommend it but it is brutal. I cried through half of it. Maybe that released some pressure inside of me and that flushed out the migraine! It’s hard to accept that humans can be so brutal to each other.

See you tomorrow.

Image credit: Image by Adam Hill from Pixabay

T+2 – Triptan

My feeling of being human was short lived and by 9pm last night, I was reaching for the ibuprofen and tylenol. This is a concoction that a doctor once told me to try so I decided to give it a shot.

The night was awful. It was one of those nights when I feel like I haven’t fallen asleep even though I must have at some point. But between 3 and 5:15, I was wide awake. I managed to doze 30 minutes before my alarm went off for work.

It almost felt as if I was waking up to see if my migraine was getting worse or better. Each time I moved, I would try to feel how I was feeling. When I got up, my head hurt like yesterday with pain under my eyes and above my eyes. I thought I would be better after a shower but no.

I had to take a frova.

Getting rid of the migraine was more important than braving it and being able to say that I was triptan free for the day. Work beckoned and I needed to answer.

I felt groggy and foggy for most of the morning but the migraine did go and while the pain threatened to return a couple of times, it did just gently ease away. Now, at 8:30pm, I am feeling a twinge of pain behind my right eye again but I am hoping that it will fade away on its own.

I do so hope that the CGRP works.

See you tomorrow.

photo credit: Image by Epic Images from Pixabay

T-1

My name is Erika.

Today is one day before I get my first Aimovig injection. I wanted to blog about the experience because the drug is new and not many people are necessarily using it yet so I thought maybe someone might be interested in learning how it goes. So here it is. Or at least, here it will be tomorrow.

For now, a bit of background if you are interested.

Why habanerobach? Two reasons:

  1. my husband picked it
  2. Somewhere, at some time, some poor migraineur has disclosed that she has migraines and the response has been, “Oh! My sister’s friend’s aunt has migraines and she eats three habanero peppers as soon as she feels the migraine and they go away. Have you tried that?” or “I get headaches too but I find that listening to soothing music like Bach really helps my headaches go away.” We’ve all heard something like that.

Today, I am on day 5 of a migraine that keeps coming back every 6 hours, once my Frovatriptan starts to wear off. Working on a computer is not ideal at the moment but I wanted to get this up and running to be able to blog the journey as I start my trip down Aimovig lane tomorrow. So this page needed to be built and content needed to be added.

To be fair, the migraine is a level 1 at the moment (on a scale of 1-3: still functioning, slowed down, unable to do anything) but it is there and threatening to get worse if I push it too far. I am home from work because being in an environment with 780 pre-pubescent teenagers is not very conducive to getting rid of a migraine.

I want to be drug-free before I get my first injection so the Frova that I took sometime in the middle of last night is the last one I intend to take before my injection. I know this could mean a very painful 36 hours but I want to feel the effect of the Aimovig, not the possible Aimovig + something else effect.

It is my goal to blog almost daily about the Aimovig and how it is working for me but at the same time, life happens and I may fall behind. I am also planning to share about my migraine journey from the past 35 years so that you can see how I got to where I am.

Aimovig doesn’t come easy. It’s been a long road full of failures to get to this point and I am excited and nervous about the unknown journey ahead. My biggest fear? What if it doesn’t work? But I’ll cross that bridge when I get there. For now, I am hopeful.

Thanks for joining me on this journey!