So it’s Wednesday, heading into week 4, so here is my report from last week. In the past week, I have had 4 days with Frova and 3 days without. That is a great ratio.
This is how the week looked:
2 double frova days with level 3 migraine
2 single frova days but with a lingering ache for most of the day. That is new to me.
But the frova free days were 100% pain free. I still stop and try to feel inside my head to see if anything is coming along to blindside me but the days have truly been pain free.
What I especially love is the waking up without a migraine. That is a real treat. Now whether that is the Aimovig, the pillow or the ginger tea, I really don’t care. I am just thrilled that I am waking up pain-free. For too long I was waking with mild to severe migraine pain.
I am getting my next delivery of Aimovig on Friday but won’t inject util the 31st as I am taking it on the last day of the month.
I am also getting my Botox injections on Friday. I am not 100% convinced that they are necessary or helpful as I had daily migraine after the last set of injections but the neurologist wanted me to continue so I will this time. I’ll chat with her on Friday about the possibility of stopping the Botox if the Aimovig is proving helpful.
I am also considering returning to get more acupuncture to see if that helps. I was having it done last summer but there was so much smoke and my migraines were so severe that I felt like I was throwing an ant at an elephant with the acupuncture. Now that things have calmed a bit, maybe my body will be more receptive to it.
I wish you a good week.
Photo credit: Image by André Santana from Pixabay
Well, I haven’t managed a day without frova this second week so that is not such a positive thing. I didn’t take frova Tuesday but then I took 2 on Wednesday, 1 in the middle of the night between Thursday and Friday (so technically I guess one of those days was “frova-free”), 1 Saturday morning, 1 Sunday lunch, 1 Monday morning, and 2 today.
So where are the small successes you might ask? First, I made it through a full week of work last week because I did not wake with a migraine once. Second, in 7 days, I only woke with a migraine 4 times. Third, despite having such a bad migraine on Wednesday that I was home in bed by 5pm and missed my family dinner, the rest of the time the migraines have been relatively short-lived and managed with only one frova.
It may not seem like a big deal when I have still had to take so many but to me, these small steps are positive. I was especially enthusiastic about my full week of work. I was starting to wonder if I’d ever have one of those again. I explained to my students about my frequent absences because we were talking about mental health and it being stigmatized since it is an invisible disease and I explained that having migraine is also an invisible disease that can be stigmatized. I was in no way saying that mental health issues and migraine are the same (thought they are co-morbid but more on that at a later date) but I wanted them to understand the idea about stigma and invisible illnesses.
“I thought you were just taking extended weekends and more holidays,” one of my students said. No my dear, there is nothing holiday-like about a migraine day.
So now I am half way through my first dose. Not a huge improvement but maybe a slight one to start with. No side-effects (touch wood) so that is positive too. Next week I will have botox injections again as my neurologist feels that I should continue with those for now. My last set of injections did NOTHING for me which was unusual but maybe with the Aimovig there will be more success.
I’ll check back in next week. For now I will sip my ginger tea and read my amazing book – The Wolf in the Whale. I highly recommend it.