Well, I haven’t managed a day without frova this second week so that is not such a positive thing. I didn’t take frova Tuesday but then I took 2 on Wednesday, 1 in the middle of the night between Thursday and Friday (so technically I guess one of those days was “frova-free”), 1 Saturday morning, 1 Sunday lunch, 1 Monday morning, and 2 today.
So where are the small successes you might ask? First, I made it through a full week of work last week because I did not wake with a migraine once. Second, in 7 days, I only woke with a migraine 4 times. Third, despite having such a bad migraine on Wednesday that I was home in bed by 5pm and missed my family dinner, the rest of the time the migraines have been relatively short-lived and managed with only one frova.
It may not seem like a big deal when I have still had to take so many but to me, these small steps are positive. I was especially enthusiastic about my full week of work. I was starting to wonder if I’d ever have one of those again. I explained to my students about my frequent absences because we were talking about mental health and it being stigmatized since it is an invisible disease and I explained that having migraine is also an invisible disease that can be stigmatized. I was in no way saying that mental health issues and migraine are the same (thought they are co-morbid but more on that at a later date) but I wanted them to understand the idea about stigma and invisible illnesses.
“I thought you were just taking extended weekends and more holidays,” one of my students said. No my dear, there is nothing holiday-like about a migraine day.
So now I am half way through my first dose. Not a huge improvement but maybe a slight one to start with. No side-effects (touch wood) so that is positive too. Next week I will have botox injections again as my neurologist feels that I should continue with those for now. My last set of injections did NOTHING for me which was unusual but maybe with the Aimovig there will be more success.
I’ll check back in next week. For now I will sip my ginger tea and read my amazing book – The Wolf in the Whale. I highly recommend it.